Tutorial Six
As a sibling who grow up around family with disabilities I
have a clear understanding for the need for support from places where you can
express your feelings and needs in a safe environment. Due to this I am basing
this post on of the support groups and communities who provide services to
families who are living with individuals who have disabilities or special needs
and want help dealing with their feelings and the aspects of life that they are
experiencing.
Family Network
This community is made up of various parents and family
members that are living with a child or children who have a disability. Their
aim is to provide support, information and advocacy for these families. The
sites purpose is to help people become aware they are not alone, there are
people going through similar experiences. The site is moderately interactive
with links to contacts for joining a support groups and also links to a blog
set up by the support groups. By having this link to a blog people have the options
to comment on the information provided on the blog and also gain more
information of what the support groups do. By joining this support group web
page and blog or contacting them to become a part of a specific group, there
becomes an opportunity to meet people who are having similar experiences to
yourself, receive information on family outing and also helps to increase the
personal support you require to manage your own life experience. People choose
to be a part of this support group as they get the opportunity to feel that
they are helping others while also helping themselves. As information can be
shared on a blog the people who want to contribute have the option to.
Kids Health, Support groups A-Z:
This is an
interactive site that is run by an organisation who are linked in with StarShip
hospital. The site links people into all and any abailible support groups for
all sorts of conditions including head injury support groups, ADHD support
groups and even support groups for those with arthritis. The site is very
interactive and easy to navigate your way around. It provides access to support
for family, friends and even the person that is having the experience and
requires support.
Kiwi Families
This web site that provides information, support and advice
to families that may need it. It is interactive as it links you in to other
sites such as parent to parent which are a site for parents to communicate with
each other. The site helps to link you in with families that are having similar
experiences or have family members with similar conditions.
By joining the sites such as family network, Kids Health
Support groups A-Z and Kiwi Families can
enable a people to ease into occupational transition. Making a transition from
their prior life and occupations, to having a life that requires them to care
for a child with a disability. It could also help to prevent occupational
deprivation from occurring as when life has large changes made to it such as
having a child with a disability some people cut themselves off, depriving
themselves of any occupations they did prior to this child coming into their
life. By receiving support from others that are experiencing similar things to
themselves people may be able to develop new occupations and be involved in new
occupations allowing them to replace the occupations they were being deprived
of with similar or better occupations. Ethical issues that may be made could be
that if an individual does not have an understanding of the site they are using
they may end up posting personal information that they meant as a private
conversation.
Overall each of these web pages along with many more help to
link together people who are going through similar experiences and allows them
to gain the support they need while going through any difficulties. Most people
think people won’t understand if they haven’t experienced it and though these
support groups people are provided with a way to communicate with those who do
understand and that are feeling similar or the same as they are themselves.
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